The SCCS-R Model: Parenting Challenges in Families of Children with Autism

Abstract

Autism is a severe childhood developmental disorder that comes with its own set of challenges and consequences for families. Once their child is diagnosed with autism, mothers and fathers will need to redefine their parenting journey as autism can have an overwhelming impact on family life especially with regard to the responsibilities shouldered by parents. In this study, the authors explore the experiences of parents who have children with autism. Using the qualitative approach which suits the aim, three mothers and three fathers of autistic children were interviewed in semi-structured interview sessions. The in-depth face-to-face interviews have garnered rich stories about their hurdles, coping strategies and expectations. Through the thematic analysis method, the authors discover notable findings regarding the problems and challenges faced by parents, which lead to the formation of the SCCS-R model. The model illustrates five main emerging themes from the data gathered: self, child, community, system and religion. It is established that the experiences and challenges could be partitioned according to different layers starting from the parents’ Self, the Child, and going further to the Society and the System at large, enfolded by Religion. Our findings can enlighten parents especially those with newly detected autistic child, and relevant parties involved in developing and providing programmes for parents.